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1.
Matronas prof ; 24(2): [1-10], 2023. ilus
Artigo em Espanhol | IBECS | ID: ibc-226155

RESUMO

Objetivo: Identificar y analizar la respuesta emocional de un grupo de internos de Obstetricia durante el desarrollo de un escenario clínico simulado de entrega de malas noticias en salud. Métodos: Estudio cualitativo con enfoque fenomenológico en el que participaron 21 estudiantes de último año de la carrera de Obstetricia de la Universidad Mayor de Santiago de Chile durante el año 2019. Posteriormente a la simulación clínica con paciente estandarizado se realizaron cuestionarios y entrevistas semiestructuradas, que fueron analizados mediante Análisis Temático Cualitativo. Resultados: Emergieron una categoría central (Emociones experimentadas durante el proceso) y cuatro subcategorías (Autopercepción de emociones en el ejercicio simulado; Emociones y malestar ante la entrega de malas noticias en salud; Sentimientos encontrados y su afección en el desempeño de la actividad; y Gestión y estrategias para la entrega de malas noticias en salud). El miedo y la ansiedad fueron las emociones más referidas, vinculadas principalmente al desconocimiento sobre la posible respuesta del paciente. La tristeza y la empatía se relacionaron con experiencias propias. Las manifestaciones físicas de la emoción pueden tornarse intensas, pudiendo desorganizar y/o bloquear el desempeño. Por último, la principal estrategia de respuesta utilizada por los estudiantes fue la represión de sus propias emociones. Conclusiones: La simulación clínica de alta fidelidad con paciente estandarizado es una herramienta muy útil para el desarrollo de competencias de entrega de malas noticias en salud. Abogamos por incorporar la educación emocional en la formación de matronas y matrones. (AU)


Objective: To identify and analyze the emotional response of a group of Obstetrics interns during the development of a simulated clinical scenario of delivering bad health news. Methods: Qualitative study with a phenomenological approach in which 21 senior students of the Obstetrics career of the Universidad Mayor de Santiago de Chile participated during the year 2019. Questionnaires and semi-structured interviews were carried out after the clinical simulation with a standardized patient, the that were analyzed through Qualitative Thematic Analysis. Results: A central category emerged (Emotions experienced during the process) and four subcategories (Self-perception of emotions in the simulated exercise; Emotions and discomfort when delivering bad health news; Mixed feelings and their effect on the performance of the activity; and Management and strategies for the delivery of bad health news). Fear and anxiety were the most frequently reported emotions, mainly linked to ignorance about the patient's possible response. Sadness and empathy were related to their own experiences. Physical manifestations of emotion can become intense, disorganizing and/or blocking performance. Finally, the main response strategy used by the students was the repression of their own emotions. Conclusions: High-fidelity clinical simulation with a standardized patient is a very useful tool for developing skills in delivering bad news in health. We advocate incorporating emotional education in the training of midwives and midwives. (AU)


Assuntos
Humanos , Obstetrícia , Emoções , Comunicação , Epidemiologia Descritiva , Chile , Tocologia , Universidades , Estudantes , Inquéritos e Questionários , Entrevistas como Assunto , Revelação da Verdade/ética
2.
Psicol. rev ; 35(2): 475-498, 22/12/2022.
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1443334

RESUMO

O trabalho teve como objetivo apresentar estratégias e dificuldades que influenciam o processo de Comunicação de Notícias Difíceis por médicos em um hospital universitário. Trata-se de um estudo descritivo-exploratório, de orientação qualitativa, sobre as estratégias e dificuldades encontradas por residentes (R1, R2 ou R3) e staffs, dos quatro programas da área médica: Ginecologia e Obstetrícia (GO), Pediatria, Cirurgia Geral (CG) e Clínica Médica (CM). A partir de uma entrevista semiestruturada para a análise dos dados foi utilizado o método do Discurso do Sujeito Coletivo (DSC), que mostrou como é importante utilizar protocolos para subsidiar a melhor abordagem com o paciente. Além da formação profissional, para realizar a comunicação de notícias difíceis, foi citado o protocolo SPIKES, seus pontos estratégicos e como ele pode auxiliar o profissional a realizar a melhor conduta. No que tange às dificuldades, a falta de preparo foi um dos destaques, bem como a ausência de um local adequado para a comunicação e os aspectos emocionais envolvidos, tanto por parte dos pacientes quanto dos profissionais de saúde. (AU)


The aim of this study was to present the strategies and difficulties that influence the process of communicating difficult news by doctors in a university hospital. This is a descriptive-exploratory study with a qualitative orientation on the strategies and difficulties encountered by residents (R1, R2 or R3) and staff from the four medical programs: Obstetrics and Gynecology (O&G), Pediatrics, General Surgery (GS) and Internal Medicine (IM). Based on a semi-structured interview, the Collective Subject Discourse (CSD) method was used for data analysis, which showed the importance of using protocols to support the best approach to the patient. In addition to professional training for communicating difficult news, the SPIKES protocol and its strategic points were mentioned, as well as how it can help professionals to conduct themselves effectively. The lack of preparation was one of the main difficulties reported, as well as the absence of an appropriate location for communication and the emotional aspects involved for both patients and health professionals. (AU)


El objetivo de este trabajo fue presentar estrategias y dificultades que influyen en el proceso de Comunicación de Noticias Difíciles por parte de médicos en un hospital universitario. Se trata de un estudio descriptivo-exploratorio, con orientación cualitativa, sobre las estrategias y dificultades encontradas por los residentes (R1, R2 o R3) y personal, de los cuatro programas del área médica: Ginecología y Obstetricia (GO), Pediatría, General Cirugía (CG) y Medicina Interna (CM). A partir de una entrevista semiestructurada para el análisis de los datos, se utilizó el método del Discurso del Sujeto Colectivo (CSD), que mostró cuán importante es el uso de protocolos para apoyar el mejor abordaje del paciente. Además de la formación profesional, para comunicar noticias difíciles, se mencionó el protocolo SPIKES, sus puntos estratégicos y cómo puede ayudar a los profesionales a llevar a cabo la mejor conducta. En cuanto a las dificultades, la falta de preparación fue uno de los destaques, así como la ausencia de un lugar adecuado para la comunicación y los aspectos emocionales involucrados, tanto por parte de los pacientes como de los profe-sionales de la salud. (AU)


Assuntos
Humanos , Masculino , Feminino , Relações Médico-Paciente , Revelação da Verdade/ética , Emoções , Pesquisa Qualitativa , Comunicação em Saúde , Hospitais Universitários , Corpo Clínico Hospitalar/psicologia
6.
Sci Prog ; 104(3): 368504211042980, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34541957

RESUMO

OBJECTIVES: This study aimed to evaluate the truthfulness of patients about their pre-appointment COVID-19 screening tests at a dental clinic. METHODS: A total of 613 patients were recruited for the study from the dental clinic at the Faculty of Dentistry, Najran University, Saudi Arabia. The data collection was done in three parts from the patients who visited the hospital to receive dental treatment. The first part included the socio-demographic characteristics of the patients and the COVID-19 swab tests performed within the past 14 days. The second part was the clinical examination, and the third part was a confirmation of the swab test taken by the patient by checking the Hesen website using the patient ID. After data collection, statistical analysis was carried out using SPSS 26.0. Descriptive analysis was done and expressed as mean, standard deviation, frequency, and percentage (%). A cross-tabulation, also described as a contingency table, was used to identify trends and patterns across data and explain the correlation between different variables. RESULTS: It was seen from the status of the swab test within 14 days of the patient's arrival at the hospital for the dental treatment that 18 (2.9%) patients lied about the pre-treatment swab test within 14 days, and 595 (97.1%) were truthful. The observed and expected counts showed across genders and diagnosis a statistically significant difference (p < 0.001), and there was no significant difference seen across different age groups (p = 0.064) of the patients. CONCLUSIONS: Dental healthcare workers are worried and assume a high risk of COVID-19 infection as the patients are not truthful about the pre-treatment COVID-19 swab test. Routine rapid tests on patients and the healthcare staff are a feasible option for lowering overall risks.


Assuntos
COVID-19/epidemiologia , COVID-19/prevenção & controle , Cooperação do Paciente/estatística & dados numéricos , Revelação da Verdade/ética , Adolescente , Adulto , Idoso , COVID-19/diagnóstico , COVID-19/transmissão , Teste para COVID-19 , Consultórios Odontológicos/ética , Consultórios Odontológicos/organização & administração , Feminino , Pessoal de Saúde/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Nasofaringe/virologia , Visita a Consultório Médico/estatística & dados numéricos , Cooperação do Paciente/psicologia , Risco , SARS-CoV-2/patogenicidade , Arábia Saudita/epidemiologia
7.
Kennedy Inst Ethics J ; 31(3): 223-246, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34565743

RESUMO

This paper presents a challenge to the view that benign 'white lies' may be therapeutic in dementia care and preferable to more truthful alternatives. Drawing on Sissela Bok and Bernard Williams, the paper develops three key points: first, that another person's dementia is not a reason to suspend one's customary reluctance to deceive others; second, that the commonly drawn contrast between benign deceit and blunt disclosure is too simple to frame arguments for the acceptability of deceit in dementia care; and third, truthful regard-regard for a person living with dementia as one for whom truth matters, as it does for oneself-is a foundation for beneficent concern that is neither infantilizing nor condescending. The paper proposes that a morally significant human bond is established through regard for another person as one for whom truth matters, just as it does for oneself, irrespective of another's dementia, and that within dementia care, the commission of deceit should be seen as an unsettling exception to a general principle of truthfulness.


Assuntos
Enganação , Demência , Relações Interpessoais , Obrigações Morais , Pessoalidade , Respeito , Revelação da Verdade/ética , Atitude , Beneficência , Cuidadores , Dissidências e Disputas , Emoções , Família , Amigos , Humanos , Princípios Morais , Apoio Social , Valor da Vida
8.
J Vasc Surg ; 74(6): 2047-2053, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-34171423

RESUMO

OBJECTIVE/BACKGROUND: With increased collaboration between surgeons and industry, there has been a push towards improving transparency of conflicts of interest (COIs). This study aims to determine the accuracy of reporting of COIs among studies in major vascular surgery journals. METHODS: A literature search identified all comparative studies published from January 2018 through December 2018 from three major United States vascular surgery journals (Journal of Vascular Surgery, Vascular and Endovascular Surgery, and Annals of Vascular Surgery). Industry payments were collected using the Centers for Medicare and Medicaid Services Open Payments database. COI discrepancies were identified by comparing author declaration statements with payments found for the year of publication and year prior. RESULTS: A total of 239 studies (1642 authors) were identified. Two hundred twenty-one studies (92%) and 669 authors (63%) received undisclosed payments when utilizing a cut-off payment amount of $250. In 2018, 10,778 payments (totaling $22,174,578) were made by 145 companies. Food and beverage payments were the most commonly reported transaction (42%), but accounted for only 3% of total reported monetary values. Authors who accurately disclosed payments received significantly higher median general payments compared with authors who did not accurately disclose payments ($56,581 [interquartile range, $2441-$100,551] vs $2361 [interquartile range, $525-$9,699]; P < .001). When stratifying by dollar-amount discrepancy, the proportions of authors receiving undisclosed payments decreased with increasing payment thresholds. Multivariate analysis demonstrated that first and senior authors were both significantly more likely to have undisclosed payments (odds ratio, 2.0; 95% confidence interval, 1.1-3.6 and odds ratio, 2.9; 95% confidence interval, 1.6-5.2, respectively). CONCLUSIONS: There is a significant discordance between self-reported COI in vascular surgery studies compared with payments received in the Centers for Medicare and Medicaid Services Open Payments database. This study highlights the need for increased efforts to both improve definitions of what constitutes a relevant COI and encourage a standardized reporting process for vascular surgery studies.


Assuntos
Pesquisa Biomédica/economia , Conflito de Interesses/economia , Setor de Assistência à Saúde/economia , Pesquisadores/economia , Autorrelato , Cirurgiões/economia , Revelação da Verdade , Procedimentos Cirúrgicos Vasculares/economia , Autoria , Pesquisa Biomédica/ética , Centers for Medicare and Medicaid Services, U.S. , Bases de Dados Factuais , Setor de Assistência à Saúde/ética , Humanos , Publicações Periódicas como Assunto/economia , Publicações Periódicas como Assunto/ética , Pesquisadores/ética , Estudos Retrospectivos , Cirurgiões/ética , Revelação da Verdade/ética , Estados Unidos , Procedimentos Cirúrgicos Vasculares/ética
10.
Acta bioeth ; 27(1): 17-25, jun. 2021.
Artigo em Espanhol | LILACS | ID: biblio-1383233

RESUMO

Resumen: Por regla general, las prestaciones de salud requieren el consentimiento informado del paciente. Los fundamentos éticos detrás de esta exigencia son la autonomía del paciente para decidir sobre su propio cuerpo y el respeto a su dignidad, que impide instrumentalizarlo. La manera en que el ordenamiento jurídico materializa estos fines es consagrando deberes de información y de consejo, y disciplinando las condiciones bajo las cuales debe prestarse el consentimiento. Jurídicamente, estos deberes delimitan la relación médico-paciente y ayudan a definir hipótesis de responsabilidad civil. En este artículo se revisan las condiciones para la satisfacción de estos deberes, así como los supuestos en que su infracción pueden dar lugar a responsabilidad civil.


Abstract: As a general rule, medical interventions require to be informingly consented by the patient. This requirement is ethically founded in the autonomy of the patient to decide on his own body and the respect for his dignity that prevent to instrumentalise it. The way in which the law materialises those ends is by implementing duties to inform and duties to advise, and regulating the conditions under which the consent must be given. Legally, those duties delimit the relation physician-patient and give guidance to define hypothesis of civil liability. In this article, we revise the conditions for the satisfaction of those duties and the cases in which their breach give rise to civil liability.


Resumo: Por regra general, as prestações de saúde requerem o consentimento informado do paciente. Os fundamentos éticos por trás dessa exigência são a autonomia do paciente para decidir sobre seu próprio corpo e o respeito à sua dignidade, que impede instrumentalizálo. A maneira em que o ordenamento jurídico materializa estes fins é consagrando deveres de informação e de aconselhamento, e disciplinando as condições sob as quais deve prestar-se o consentimento. Juridicamente, estes deveres delimitam a relação médico-paciente e ajudam a definir hipóteses de responsabilidade civil. Neste artigo se revisam as condições para a satisfação destes deveres, assim como os pressupostos em que sua infração podem dar lugar à responsabilidade civil.


Assuntos
Humanos , Revelação da Verdade/ética , Autonomia Pessoal , Atenção à Saúde/ética , Consentimento Livre e Esclarecido/legislação & jurisprudência , Consentimento Livre e Esclarecido/ética , Relações Médico-Paciente/ética , Direitos do Paciente , Responsabilidade Civil , Atenção à Saúde/legislação & jurisprudência
11.
Acta bioeth ; 27(1): 59-67, jun. 2021.
Artigo em Inglês | LILACS | ID: biblio-1383246

RESUMO

Abstract: Recent studies highlight the importance of digital surveillance to gather individual health information due to the global pandemic caused by the new COVID-19 disease. This paper analyses its legal and ethical implications at the interface between the individual right to privacy and the collective interests of public health. We framed the discussion in law, deontology and utilitarianism. The lasted theories and human rights, especially privacy, are crucial in our argument. Health-derived dilemmas and efforts to solve them, especially by information technologies, bioethics and law, exist at these perspectives' interface. In particular, we analysed the intersection between autonomy, the right to privacy, and the so-called 'right to be forgotten' in the public health context. In other words, we studied the right to obtain from the controller the erasure of health data - a radical means of control over personal data established in Article 17 of the General Data Protection Regulation (GDPR). Given the lack of specifics regarding collection and re-use of such data under the broad scope of public health purposes, implied consent does not address the issue of proportionality. We highlight legal safeguards' insufficiency, suggesting applying the 'right to be forgotten' according to an ethical interpretation.


Resumen: Estudios recientes destacan la importancia de la vigilancia digital para recoger información sanitaria individual debido a la pandemia mundial causada por la nueva enfermedad COVID-19. Este artículo analiza sus implicaciones legales y éticas en la interfaz entre el derecho individual a la privacidad y los intereses colectivos de la salud pública. Enmarcamos la discusión en el derecho, la deontología y el utilitarismo. Estas últimas teorías y los derechos humanos, especialmente la privacidad, son cruciales en nuestro argumento. Los dilemas relacionados con la salud y los esfuerzos por resolverlos, especialmente a través de la tecnología de la información, la bioética y el derecho, se encuentran en la interfaz de estas perspectivas. En particular, analizamos la intersección entre la autonomía, el derecho a la privacidad y el llamado "derecho al olvido" en el contexto de la salud pública. Es decir, estudiamos el derecho a obtener del responsable del tratamiento la supresión de los datos de salud, un medio radical de control sobre los datos personales establecido en el artículo 17 del Reglamento general de protección de datos (RGPD). Dada la falta de especificidades en cuanto a la recogida y reutilización de dichos datos dentro del amplio ámbito de los objetivos de salud pública, el consentimiento implícito no aborda la cuestión de la proporcionalidad. Destacamos la insuficiencia de las garantías legales, sugiriendo la aplicación del "derecho al olvido" según una interpretación ética.


Resumo: Estudos recentes salientam a importância da vigilância digital para recolher informações individuais de saúde devido à pandemia global causada pela nova doença COVID-19. Este artigo analisa as suas implicações legais e éticas na interface entre o direito individual à privacidade e os interesses coletivos da saúde pública. Enquadramos a discussão no direito, na deontologia e no utilitarismo. As últimas teorias e os direitos humanos, especialmente a privacidade, são cruciais na nossa argumentação. Dilemas derivados da saúde e esforços para os resolver, especialmente através das tecnologias da informação, da bioética e do direito, existem na interface destas perspetivas. Em particular, analisámos a intersecção entre autonomia, direito à privacidade, e o chamado "direito ao esquecimento" no contexto da saúde pública. Por outras palavras, estudámos o direito de obter do responsável pelo tratamento o apagamento dos dados de saúde, um meio radical de controlo dos dados pessoais estabelecido no artigo 17º do Regulamento Geral de Proteção de Dados (RGPD). Dada a falta de especificidades em relação à recolha e reutilização de tais dados no âmbito alargado dos objetivos de saúde pública, o consentimento implícito não aborda a questão da proporcionalidade. Destacamos a insuficiência de salvaguardas jurídicas, sugerindo a aplicação do "direito ao esquecimento" de acordo com uma interpretação ética.


Assuntos
Humanos , Revelação da Verdade/ética , Confidencialidade/ética , Privacidade , Direitos do Paciente , COVID-19 , Saúde Pública , Confidencialidade/legislação & jurisprudência , Pandemias
12.
CMAJ Open ; 9(2): E570-E575, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34021015

RESUMO

BACKGROUND: Factors influencing the quality of end-of-life communication are relevant to improving end-of-life care. We assessed the quality of end-of-life communication and influencing factors in 2 intensive care unit (ICU) cohorts at high risk of death: patients living in nursing homes and those on extracorporeal membrane oxygenation (ECMO). METHODS: This retrospective cohort study included admissions to 4 ICUs in Winnipeg, Manitoba, from 2000 to 2017. We identified cohorts and influencing factors from the Winnipeg ICU database and by manual chart review. We assessed quality of end-of-life communication using 18 validated, binary quality indicators to calculate a weighted, scaled, composite score (range 0-100). We used median regression to identify factors associated with the composite score. RESULTS: The ECMO cohort (n = 109) was younger than the nursing home cohort (n = 230), with longer hospital stays and higher disease severity. Mean composite scores of end-of-life communication were extremely low in both cohorts (mean 48.5 [standard error of the mean (SEM) 1.7] for the nursing home cohort, 49.1 [SEM 2.5] for the ECMO cohort). Patient characteristics associated with higher median composite scores were older age (5.0 per decade, 95% confidence interval [CI] 2.1-7.8) and lower (worse) Glasgow Coma Scale (GCS) scores (1.8 per GCS point, 95% CI 0.5-3.2). The median composite score rose significantly over time (1.7 per year, 95% CI 0.5-2.8). INTERPRETATION: The quality of end-of-life communication in ICUs is poor, and factors associated with better prognosis are also associated with worse communication. Direct and early communication should occur with all patients in the ICU and their surrogates, not just those who are believed most likely to die.


Assuntos
Barreiras de Comunicação , Estado Terminal , Morte , Relações Profissional-Paciente/ética , Qualidade de Vida , Assistência Terminal , Revelação da Verdade/ética , Planejamento Antecipado de Cuidados/ética , Idoso , Canadá/epidemiologia , Estado Terminal/mortalidade , Estado Terminal/psicologia , Oxigenação por Membrana Extracorpórea/métodos , Oxigenação por Membrana Extracorpórea/mortalidade , Oxigenação por Membrana Extracorpórea/psicologia , Feminino , Humanos , Unidades de Terapia Intensiva/ética , Unidades de Terapia Intensiva/normas , Unidades de Terapia Intensiva/estatística & dados numéricos , Masculino , Pessoa de Meia-Idade , Casas de Saúde/ética , Casas de Saúde/estatística & dados numéricos , Prognóstico , Qualidade da Assistência à Saúde/organização & administração , Qualidade da Assistência à Saúde/normas , Medição de Risco , Índice de Gravidade de Doença , Assistência Terminal/métodos , Assistência Terminal/psicologia
13.
BMJ Support Palliat Care ; 11(2): 128-132, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-33762267

RESUMO

Requesting that serious diagnoses be concealed from patients, a widespread phenomenon in many cultures, presents a professional dilemma. Practical and sensitive communication strategies are needed. METHODOLOGY: In this paper, we use analysis of the existing literature to develop a communication tool for practitioners facing requests for diagnostic non-disclosure. Our approach builds on existing strategies, in providing a mnemonic communication tool, permitting more than one outcome, and focusing on the need for mutual understanding and cooperation. RESULTS: Existing work on this dilemma highlights the need to appreciate the family's standpoint, affirm their benevolent intentions and correct misperceptions. To this end, we have developed a mnemonic tool, 'ARCHES', to be used in situations where the family has requested diagnostic non-disclosure. The model has six stages: acknowledge the request for non-disclosure, build the relationship, find common ground, honour the patient's preferences and outline the harm of non-disclosure, provide emotional support and devise a supportive solution. CONCLUSION: Facing requests for diagnostic non-disclosure is a challenge of communication. The dilemma is particularly marked when practising across cultures. Our model gives a structure for building rapport with the family and realigning their misperceptions while upholding the patient's right to knowledge.


Assuntos
Comunicação , Assistência à Saúde Culturalmente Competente/normas , Família/psicologia , Direitos do Paciente/ética , Relações Médico-Paciente/ética , Guias de Prática Clínica como Assunto , Revelação da Verdade/ética , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
14.
Enferm. intensiva (Ed. impr.) ; 32(1): 18-36, ene.-mar. 2021. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-202297

RESUMO

OBJETIVO: La información es una de las necesidades más importantes de los familiares de pacientes críticos. Los profesionales sanitarios identifican también el gran valor de la comunicación con los familiares para reducir su ansiedad y su estrés. A pesar de ello, los familiares pueden sentirse indebidamente informados, lo cual causa un sufrimiento añadido. El objetivo de este estudio es tratar de comprender las perspectivas de los familiares y los profesionales sanitarios sobre la información que se aporta en las unidades de cuidados intensivos (UCI). MÉTODO: Se realizó una revisión narrativa utilizando las bases de datos MEDLINE, CINAHL, PsycINFO y Cochrane Library para identificar los estudios publicados en inglés y en español de 2002 a 2018. RESULTADOS: Se incluyeron 46 estudios, identificándose cinco categorías: 1)«Necesidad de saber»; 2)«Satisfacción del familiar con la información recibida»; 3)«Impacto de la información en las experiencias de los familiares en la UCI»; 4)«Percepciones de las enfermeras y médicos sobre la transmisión de información», y 5)«Proceso de información en la UCI». CONCLUSIONES: La aportación de información honesta y veraz a los familiares de los pacientes críticos es esencial para reducir su ansiedad e incrementar su control, aunque parece que esto no siempre es adecuadamente realizado por el personal. La implicación interdisciplinaria en la aportación de información puede ser beneficiosa para los familiares y los profesionales de las UCI. Esta revisión aporta una nueva comprensión acerca del proceso de información a los familiares de los pacientes de la UCI y puede utilizarse para mejorar la calidad y la humanización de los cuidados en dichas unidades


AIM: Information is one of the most important needs of families of critical patients. Healthcare professionals also identify the great value of communication with families to reduce their anxiety and stress. Despite this, families may feel inadequately informed, causing added suffering. The purpose of this study is to provide an understanding of both families' and healthcare professionals' perspectives on information giving within intensive care units (ICU). METHOD: A narrative review was conducted using MEDLINE, CINAHL, PsycINFO databases and the Cochrane Library to identify studies published in either English or Spanish from 2002 to 2018. RESULTS: 47 studies were included, and five categories were identified: 1)"the need to know"; 2)family satisfaction with the information received; 3)impact of information on families' experiences in the ICU; 4)nurses and physicians' perceptions of information transmission, and 5)information process in the ICU. CONCLUSIONS: Providing honest and truthful information to the families of critical patients is essential to reduce family anxiety and increase family control, although this often appears to be inadequately accomplished by staff. Interdisciplinary involvement in information giving may be beneficial for both families and ICU professionals. This review brings new understanding about the process of information to families of ICU patients and it can be used to improve the quality and humanization of care in the ICUs


Assuntos
Humanos , Unidades de Terapia Intensiva/organização & administração , Comunicação em Saúde/tendências , Revelação da Verdade/ética , Relações Profissional-Família , Humanização da Assistência , Pessoal de Saúde
15.
HEC Forum ; 33(1-2): 73-90, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-33587216

RESUMO

The Covid-19 pandemic has presented major challenges to society, exposing preexisting ethical weaknesses in the modern social fabric's ability to respond. Distrust in government and a lessened authority of science to determine facts have both been exacerbated by the polarization and disinformation enhanced by social media. These have impaired society's willingness to comply with and persevere with social distancing, which has been the most powerful initial response to mitigate the pandemic. These preexisting weaknesses also threaten the future acceptance of vaccination and contact tracing, two other tools needed to combat epidemics. Medical ethicists might best help in this situation by promoting truth-telling, encouraging the rational adjudication of facts, providing transparent decision-making and advocating the virtue of cooperation to maximize the common good. Those interventions should be aimed at the social level. The same elements of emphasizing cooperation and beneficence also apply to the design of triage protocols for when resources are overwhelmed. A life-stages approach increases beneficence and reduces harms. Triage should be kept as simple and straightforward as reasonably possible to avoid unwieldly application during a pandemic.


Assuntos
COVID-19/prevenção & controle , Eticistas , Pandemias/prevenção & controle , Distanciamento Físico , Papel Profissional , Comportamento Cooperativo , Tomada de Decisões/ética , Humanos , Alocação de Recursos/ética , SARS-CoV-2 , Triagem/ética , Revelação da Verdade/ética
16.
Nurs Ethics ; 28(1): 131-144, 2021 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-32985367

RESUMO

BACKGROUND: Error communication includes both reporting errors to superiors and disclosing their consequences to patients and their families. It significantly contributes to error prevention and safety improvement. Yet, some errors in intensive care units are not communicated. OBJECTIVES: The aim of the present study was to explore factors affecting error communication in intensive care units. DESIGN AND PARTICIPANTS: This qualitative study was conducted in 2019. Participants were 17 critical care nurses purposively recruited from the intensive care units of 2 public hospitals affiliated to Iran University of Medical Sciences, Tehran, Iran. Data were collected through in-depth semi-structured interviews and were analyzed through the conventional content analysis method proposed by Graneheim and Lundman. ETHICAL CONSIDERATIONS: The Ethics Committee of Iran University of Medical Sciences, Tehran, Iran approved the study (code: IR.IUMS. REC.1397.792). Participants were informed about the study aim and methods and were ensured of data confidentiality. They were free to withdraw from the study at will. Written informed consent was obtained from all of them. FINDINGS: Factors affecting error communication in intensive care units fell into four main categories, namely the culture of error communication (subcategories were error communication organizational atmosphere, clarity of processes and guidelines, managerial support for nurses, and learning organization), the consequences of errors for nurses and nursing (subcategories were fear over being stigmatized as incompetent, fear over punishment, and fear over negative judgments about nursing), the consequences of errors for patients (subcategories were monitoring the effects of errors on patients and predicting the effects of errors on patients), and ethical and professional characteristics (subcategories were ethical characteristics and inter-professional relationships). DISCUSSION: The results of this study show many factors affect error communication, some facilitate and some prohibit it. Organizational factors such as the culture of error communication and the consequences of error communication for the nurse and the patient, as well as individual and professional characteristics, including ethical characteristics and interprofessional relationship, influence this process. CONCLUSION: Errors confront nurses with ethical challenges and make them assess error consequences and then, communicate or hide them based on the results of their assessments. Health authorities can promote nurses' error communication through creating a supportive environment for them, developing clear error communication processes and guidelines, and providing them with education about the principles of ethical practice.


Assuntos
Barreiras de Comunicação , Enfermagem de Cuidados Críticos/ética , Erros Médicos/ética , Revelação da Verdade/ética , Adulto , Feminino , Humanos , Unidades de Terapia Intensiva , Irã (Geográfico) , Masculino , Pesquisa Qualitativa
17.
Health Info Libr J ; 38(2): 143-149, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-32657000

RESUMO

Recent statistics show that almost 1/4 of a million people have died and four million people are affected either with mild or serious health problems caused by coronavirus (COVID-19). These numbers are rapidly increasing (World Health Organization, May 3, 2020c). There is much concern during this pandemic about the spread of misleading or inaccurate information. This article reports on a small study which attempted to identify the types and sources of COVID-19 misinformation. The authors identified and analysed 1225 pieces of COVID-19 fake news stories taken from fact-checkers, myth-busters and COVID-19 dashboards. The study is significant given the concern raised by the WHO Director-General that 'we are not just fighting the pandemic, we are also fighting infodemic'. The study concludes that the COVID-19 infodemic is full of false claims, half backed conspiracy theories and pseudoscientific therapies, regarding the diagnosis, treatment, prevention, origin and spread of the virus. Fake news is pervasive in social media, putting public health at risk. The scale of the crisis and ubiquity of the misleading information require that scientists, health information professionals and journalists exercise their professional responsibility to help the general public identify fake news stories. They should ensure that accurate information is published and disseminated.J.M.


Assuntos
COVID-19 , Comunicação , Saúde Pública , Mídias Sociais/estatística & dados numéricos , Revelação da Verdade/ética , Fraude/prevenção & controle , Saúde Global , Humanos
18.
Support Care Cancer ; 29(3): 1157-1159, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33025228

RESUMO

India has a distinct pattern of cancer care delivery, with unique sociocultural milieu and patient characteristics. In the current era of patient-centered and personalized care, there is an unmet need for an abbreviated protocol for breaking bad news to cancer patients suitable for the Indian outpatient setting. We propose a short four-step protocol for breaking bad news effectively and caringly, in the outpatient department of oncology clinics.


Assuntos
Neoplasias/terapia , Revelação da Verdade/ética , Humanos , Índia
19.
Med Princ Pract ; 30(1): 17-28, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-32498071

RESUMO

An overview of ethics and clinical ethics is presented in this review. The 4 main ethical principles, that is beneficence, nonmaleficence, autonomy, and justice, are defined and explained. Informed consent, truth-telling, and confidentiality spring from the principle of autonomy, and each of them is discussed. In patient care situations, not infrequently, there are conflicts between ethical principles (especially between beneficence and autonomy). A four-pronged systematic approach to ethical problem-solving and several illustrative cases of conflicts are presented. Comments following the cases highlight the ethical principles involved and clarify the resolution of these conflicts. A model for patient care, with caring as its central element, that integrates ethical aspects (intertwined with professionalism) with clinical and technical expertise desired of a physician is illustrated.


Assuntos
Beneficência , Ética Clínica , Assistência Centrada no Paciente/ética , Autonomia Pessoal , Justiça Social , Confidencialidade/ética , Humanos , Consentimento Livre e Esclarecido/ética , Princípios Morais , Negociação , Resolução de Problemas , Revelação da Verdade/ética
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